Showing posts with label cleft lip and palate. Show all posts
Showing posts with label cleft lip and palate. Show all posts

Tuesday, October 29, 2013

Gotcha Day- one year!

Referral picture

Yesterday marked the one year anniversary of Jack Nathan's "Gotcha" Day.  It's hard to believe so many days have passed since we first held him.  Those adorable eyes and that precious smile... I'll never forget it.

So much happened on that trip, it's difficult for us to think about it and remember all the details.  For this occasion we just want to remember the blessing that we received in Jack and the Lord's faithfulness in those first few days together.

What a difference one Year makes!












Today- wearing his Chinese outfit!





2 years 9 months old



Thursday, October 24, 2013

Soft diet continues



Jack, enjoying some soup with rice.  Mmmmm!

Tuesday, October 1, 2013

Palate repair recovery



Today has been a good day!  Jack woke up this morning, sat up in bed and drank some juice.  He kept signing "eat" but only took a few tiny bites of his pureed breakfast.  Later he managed to eat a popsicle.  




His doc came by early this morning and planned for us to stay another night.  By this afternoon Jack was doing so well drinking fluids and taking his oral pain meds Dr. R said we could go home!  We are all really glad to be home and sleeping in our beds.

Jack is such a good little patient!  We sat together in his crib all morning, playing with legos and watching cartoons and the food network.



The Elmo balloon was his main comfort item.  Patrick got it for him when he was so upset after waking from anesthesia and hurting.  He never let go of that balloon, even in his sleep.  The nurses commented on how funny he was, clutching his balloon.  He even tried to feed Elmo his drinks and pudding!


packing up to go home




We will be enjoying having Daddy home for a while... he was furloughed today from work.  

Monday, September 30, 2013

Cleft Palate Repair



Happy in pre-op

 Today was Jack Nathan's BIG surgery day!  We woke up bright dark and early to head South to Children's hospital.  He was the first case scheduled this morning, so that was helpful.  I don't think he had time to feel hungry.  

They took him back to surgery at 7 am sharp.  We got 3 update calls during the morning, all saying he was doing just fine.  The Doc finally came out to talk to us about 11:30 to say all went well, although his palate was very wide and difficult to repair.  He felt confident it will work great once all is healed!  Praise the Lord!


We made it to our room on the burn unit around 1 pm with a very tearful, sad little boy.  The staff has been great at keeping his Morphine coming as needed.  He has slept on and off all afternoon/evening, with a few tearful, wakeful spells.  He's getting breathing treatments to help him breathe easier due to all the swelling in and around his airway.  Apparently some kids have trouble with their airways after this surgery... so far so good for this tough guy!

Patrick headed home for the night and we are mostly tucked in until the next pain med is due.

Thanks for all of you who prayed for this little one.  He's been through a lot and has more to come in the future.  But it's all positive steps in the right direction!

Friday, August 2, 2013

Summer Cleft Clinic



Yesterday was cleft clinic day.  A follow up from Jack's lip repair and discussion of his upcoming palate repair.  The good Dr. was very pleased with Jack's lip and the healing that's taken place over the past many weeks!  (he liked his glasses too!)

We talked about the next step of repair work and he explained the rather complicated steps involved surgically.  Thankfully he drew a diagram for me... I always need that.  Plus it gives me something to show Patrick as I try to relay the information.


Our next pre-op visit will be September 5th for a surgery date of September 23rd... yes, on my birthday.