Wednesday, May 25, 2011

Levi's 1st Hair Cut

Today is the day!  Our baby is officially a toddler.   It's surprising how a little hair cut can make a baby into a boy.

So cute!

Saturday, May 21, 2011

Soy to the rescue!

So we've switched AGAIN to a new formula for Abby.  She was having such a hard time on the Pediasure, although it took us a while to narrow down the problem.

How do we know?

She wasn't sleeping well, still biting her fingers and crying often, and a few other personal issues.

Since switching to the Soy formula along with adding a ton more water to her daily diet (in cooperation with her dietician) we have come to what seems like a solution!  She is sleeping better and seems happier, most of the time.

Yea for Soy!

Thursday, May 19, 2011

23 Months

Spring is in full swing and our littlest munchkin is almost 2!!  It's hard to believe he is so big.

And no, we haven't cut his hair yet... stay tuned for that coming soon!

In this 23rd month he is developing his speech more, continuing to climb like a monkey and becoming a typical picky eating toddler.  His giggles are deeper and his smiles seem bigger!  Levi is our best sleeper and continues to sleep through the night and often doesn't wake up until 8 am.

He and his brother are becoming better friends and figuring out how to play (and fight) together.

One thing about Levi that is unique... he's a screamer!  Yes, he can scream with the best of them.  He screams when Josiah gets in his personal space, he screams when we tell him the snacks are gone and he screams when he's told he can't go outside.  And yes, we are working on this.

Levi is our rough and tumble boy.  His newest trick is to climb on the ottoman, hands raised in a diving pose and literally dives off into pillows!  And he says "whoooooaaahhh" all the way down.

Friday, May 13, 2011

The wedge

Abby has trouble holding her head up due to her floppy CP.  Now that she is growing taller it seems her head lags forward even more than before, especially when sitting in her wheel chair.

To help strengthen her back and neck muscles she spends time on The Wedge!  (the boys think it's a slide... I'll try to get them on video soon playing with it and the couch.  It's pretty funny)   

It's not her favorite thing to do, but she is definitely motivated to get off!

You can tell she's working hard when her hair gets messed up!

Tuesday, May 10, 2011


Today during nap time I found this happening along with cries of "stuck!"  Apparently our littlest munchkin thinks he's too big for a crib.

Wednesday, May 4, 2011

One Year Miracle

A huge milestone has been met!  As of last Thursday, Abby has made it ONE WHOLE YEAR without a status (prolonged) seizure!

This is a miracle for us.

After her emergency shunt revision last April she had a big seizure the next day that sent her back to Children's in a helicopter (in this post).  But since that day...

No ER visits (for Big seizures)!!!

Yesterday Abby and I trekked back down to Birmingham for her one year neurosurgery check up.  CT of her brain looked good and we got to share the great news with her surgeon and all of his staff.  They were thrilled too!  Especially after the commotion we caused at last year's visit!

This is huge for our family.  Going from ER visits about every 3 months with a seizing Abby to none at all for a whole year!

This is cause for a celebration!